Please read this Policy carefully. If you do not agree to the terms of this Policy, please do not disclose any Personal Information through this Site. By using this Site, you consent to the information collection and use practices in accordance with this Policy.
We reserve the right to update this Policy from time to time so please review it regularly. If we materially alter our Policy, we will post such changes on our Site. Your continued use of the Site will be subject to the new Policy. If you do not agree with the changes, then you should stop using the Site.
Collection of Personal Information
Our site is structured in order for you to visit it without identifying yourself or revealing any Personal Information. If you choose to provide us with information by which you can be identified you can be assured that it will only be used in accordance with this Policy. However, in order to take advantage of certain features and obtain personalized and relevant information through our Site, it may be necessary to provide Personal Information. We may collect certain Personal Information from you when you send us a comment or question, or when you request information about our Site. This Personal Information may include your name, e-mail address, and possibly other information. If you do not want to give us any Personal Information, you can choose not to use these features of the Site. Please do not provide any sensitive information or health information. If you should do so inadvertently, we will use and disclose that information in the same manner as any other information you provide to us.
Where Information Is Processed
This Site is maintained by Aeglea in the United States, but the information you provide may be accessible to our collaborators and service providers in other countries. Moreover, if you are visiting this Site from a country other than the United States, your communication with us will necessarily result in the transfer of information across international borders. Your use of this Site indicates your consent to the collection, storage, and processing of your Personal Information in the United States and in any country to which we may transfer your information in the course of our business operations. The laws of the United States may not provide the same level of data protection as the laws in your country.
Collection and Use of Non-Personal Information
In operating our Site, we may automatically collect through this website that, alone, cannot be used to identify you (referred to as “non-personal information”). Examples of types of non-personal information that we may collect include web pages viewed, browser type, usage and similar data. We may also aggregate demographic information collected from our users (such as the number of users in a particular geographic location) in a manner which does not identify any one individual. We may use this non-personal information in aggregate form for product and service development, for market analysis, and to understand how to improve the quality of our Sites. In doing so, we may provide it to third parties.
A “cookie” is a piece of text that asks permission to be placed on your computer’s hard drive. Once you agree, this cookie file is stored on the hard drive of your computer. They help us improve our Site. They ensure that the content from our Site is presented in the most effective manner for you and your computer.
All computers have the ability to decline cookies. This can be done by activating the setting on your browser that enables you to decline the cookies. Please note that should you choose to decline cookies, you may be unable to access particular parts of our Site.]
Use and Disclosure of Personal Information
We use your Personal Information for only limited purposes. We use Personal Information to provide the information and services that you request in the best possible manner. In addition, we may use your Personal Information in aggregate form to help us evaluate and modify our existing services and to help us develop additional services that are likely to be of interest to visitors of our Site. We will also use your information to communicate with you about our relationship, and where permitted by law, to send you information about the company, our products or services and other information we believe you may find of interest.
Aeglea takes very seriously its responsibility to keep your information private. Accordingly, Aeglea shares your Personal Information only under limited circumstances. We may provide Personal Information to any affiliate entity of Aeglea, our collaborators, and service providers we may engage to assist us. For example, we may provide your Person Information to an organization in order to deliver information you have requested, or to provide marketing materials on our behalf. We will also disclose information if we reasonably believe we are required to do so by law, regulation or other government authority request. We will also disclose information if we believe it is necessary to protect our company or visitors of the Site.
We take commercially reasonable physical, electronic, and administrative measures designed to safeguard and secure the information we collect on our Site.
Nonetheless, please be aware that transmitting information via the Internet or storing information is not completely secure and therefore we cannot guarantee the security of any information.
Our Policy toward Children
It is our policy not to collect, maintain, or process Personal Information from persons we know to be under 13 years of age. If you are the parent or guardian of a child under the age of 13 who you believe may have provided Personal Information to us, please contact us and we will promptly delete such information from our files.
Updating Personal Information
If you later decide that you do not want your Personal Information used for the purposes described in this Policy, please contact us using the contact details below to request removal of your Personal Information from our files. You may also “opt-out” of receiving e-mails and other communications from us by using the unsubscribe feature included in the e-mails we send.
If you believe any information we are holding about you is incorrect or incomplete, please inform us as soon as possible using the contact information below.
Links to Other Sites
Some of our Site features may contain links to third party websites or services that are not under our control. Such links do not constitute an endorsement of those third parties or the content displayed on their sites. We provide these links to you only as a convenience, and any information you provide to those third parties will be used as described by the third parties in their own privacy policies.
To comply with the existing General Data Protection Regulation (GDPR) in the European Union (EU) and the United Kingdom (UK), Aeglea has appointed two Data Protection Representatives in the respective regions. Any patient participating in one of our clinical trials in the EU or the UK may reach out to their representative below with any questions regarding our data protection and privacy policies.
For clinical trial participants in the European Union:
Ehlers, Ehlers & Partner
D-80538 München, Germany
For clinical trial participants in the United Kingdom:
Bird & Bird GDPR Representative Services UK
12 New Fetter Lane
805 Las Cimas Parkway, Suite 100, Austin, TX 78746